This is Anita, Amy's mom, posting for her. Today was biopsy day for Amy. Overall, it was the best biopsy yet. The doctors have found a good mixture of drugs to help her. She mainly felt pressure and poking and very minimal pain. Her new hematologist, Dr. Kingslee, did a great job. He has shown all of us so much kindness. We are grateful that he came in yesterday and prayed with Amy and then also prayed with her today before he did the biopsy. He will probably know preliminary results Friday afternoon. Otherwise we should know results on Monday.
Amy is still spiking fevers throughout most days. We had news this afternoon that blood cultures are positive for staph infection in her Hickman port line. This is not good news at all. It means they will have to remove the port from her, treat her with powerful antibiotics, and re-insert a port after the infection is gone. This is definitely a matter of prayer for God's protection over her body. She is also on an anti-fungal called amphotericin-B, nicknamed ampho-terrible. After about the first 1 or 2 hours of infusion she reacts with tremors that only seem to stop after they give her several doses of demerol. The infectious disease doctors say that she must have this drug since she is still neutropenic. Her counts remain low and they are giving her red blood tonight and gave her platelets earlier in the day.
We have heard from Barnes Hospital in St. Louis today. They report to us that Amy has 4 siblings who are perfect matches for a bone marrow transplant. This information has been reported to the physicians and we should hear from them as to which one they feel will be the best match for her. Until then, we are not saying who the blessed four are. Stay tuned. . . Please remember to pray for the little girl that Amy has mentioned in the past, Baby Livi, who has no siblings and needs to find a perfect match for her future BMT. We are grateful to the Lord for His provisions for Amy and know that His hand has provided. "All I have needed Thy hand hath provided. Great is Thy faithfulness, Lord unto me!!"
Thank you as always for praying for Amy and all of us.
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26 comments:
I prayed for you often this morning, Amy, and I'm so glad to hear the biopsy went better.
We'll be praying for the infection to clear up and strength for your body.
Much love~
Rachel E
Praise God for the wonderful news of the 4 matches!!!!!!
Hang in there Amy! We love you and are praying for you as are so many others.
Love,
Anne for all the Calzones
Yes, praise God for the matches. Oh, what wonderful news.
And I'm so pleased (though probably not as much as you) that they find something to give you some relief during this biopsy.
We'll be in prayer over these other things cropping up...love ya!
Hey, you don't know who I am, but I'm a close friend to Patrick and I know Elizabeth a little.I think your testimony is amazing and I will be praying for all of you. Romans 8:27-28
Your brother in Christ
Amy,
I am so excited about your matches! Praise the Lord. God is still faithful!
I love you,
Emily
So pleased to hear that the biopsy went better and that there is also a praise report in those 4 matches!
I continue to pray for good biopsy results and relief for Amy with regard to all the side-effects! Prayers as well for the infections and a fast recovery from those!
Hugs!
April
Praise God for four matches! And what a blessing to have a biopsy go well.
I will continue to pray for Amy, that these hards days find her snugly resting in the Lord's arms, letting Him care for her in her illness.
God Bless you all. I will also pray that the biopsy results are encouraging and the infection clears quickly.
I've have been following Amy's progress & just BURST INTO TEARS at the news that she has not one, but 4 matches!! PRAISE GOD!!
Praying that the antibiotics do a quick job on the staph & that she will find some physicial relief very soon.
Hang on tight, Amy! You are always in my prayers!
Lacey Jordan
Rejoicing about the sibling matches. Praying for Amy's endurance and healing...
Amy, Brandon, and family - I'm praying for y'all. May you experience God's faithfulness through every moment of these days. He giveth strength in the day of trouble.
"Have I not commanded you? Be strong and of good courage. Be not frightened, neither be dismayed, for the Lord your GOD will be with you wherever [and through whatever] you go!"
Prayerful,
Galen
Prayed for you yesterday and this morning Amy. I am so glad to hear about the 4 matches. I will continue to pray for your healing.
Wendy in IA
Amy,
I was so glad to hear the news that this biopsy went much smoother. I was praying all morning that the doctors would find something to help with the pain. God is so good and faithful to hear and answer our prayers.
I am thrilled to hear that you have four sibling matches. I am praying every day that all goes perfectly well with the transplant and that you will be restored to health and be able to go home.
I am sorry to hear about the problem with your port. I just had mine removed on Monday and that surgery went very smoothly. I will pray the same for yours if they need to take it out.
Romans 15:13
Now may the God of Hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit!
Love,
Gina Dunn
Amy, my computer was being repaired and I havn't been able to check in with you, but I've been praying since we heard of your remission.
I will continue to pray for your recovery. I pray especially for your infection to clear.
Amy, my computer was being repaired and I havn't been able to check in with you, but I've been praying since we heard of your remission.
I will continue to pray for your recovery. I pray especially for your infection to clear.
Dear Amy, We continue to believe the Word on your behalf. We pray for His blessings and benefits to be granted to you in abundance. We do pray for your whole family,too. Love and prayers, Joe and Marilyn Breshears
Amy, Brandon, Anita, and Family All
We are thankful for the good news and continue in prayer and dependence on the Lord's provision for all that is and is yet to be.
May you continue to find strength in the Lord and His Word.
Our Love To You All,
Don and Lilan
Continuing to pray for you all! I earnestly pray the infection will go away very quickly!
PTL for four donor matches!!! I'm sure that you all are very excited about that news.
Love, hugs, blessings,
Amber
FOUR siblings are matches! Wow. Amazing and wonderful news.
I'm concerned about the staph infection - any thoughts or comments on how and where and why it was picked up when it should be a steril environment?
God Bless ya Amy.... let's hope and pray he has big plans for you!
Hi Amy!
I haven't written on here before, but I just wanted to you to know that God is bringing you to my mind over and over again every day to lift you up in prayer. I pray for your cure, that the treatments necessary to get to the cure will be as easy as possible, and for physical, spiritual, and emotional strength for you and your family. I can't imagine how incredibly difficult this all is, but I know without a doubt that God has a great plan for your life. Just keep leaning on Him and He will get you through!
Christi (Smith) Parker
What wonderful news about the matches. There's so much hope now because of that. Thank you, Anita, for updating us. We're all praying so hard for Amy and for all of you.
She's having a rough time of it right now. I feel so awful for her. But it's so encouraging that she has a bone marrow match.
You're all in my prayers.
Amy,
We continue to pray for you and your family during this time.
What a blessing that you have 4 sibling matches! GOD IS SOOOO GOOD!
Thanks for keeping us updated.
Love and many prayers,
The Spaulding Family in KY
Praise God for the 4 perfect matches, the less painful biopsy and the wonderful, caring new doctor!!!
Praying for your healing!
I love you Amy!
I'm always praying!
Love your little sis,
Lizzie
PTL for the 4 matches! What great news. Praying for a quick recovery from the staph infection.
Lawauna
dear amy,
i wanted to let you know that you and your family have been such an encouragement to me and my husband. you have been through so much and continue to go through so much. praise God for you. as people say to my husband, "you have been called to active duty." it is clear that God has used you to touch so many hearts. we rejoice with you to know you have four perfect matches. there will still be rough roads ahead, but it is clear that with God you have the strength to handle it.
God bless you and yours,
Karen and Joe
I am praying for positive results from the biopsy. I am thanking God for His grace, and am so thankful that there are 4 PERFECT matches. God bless,
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