I spent the early morning hours with a temp around 104-105, feeling really miserable. They aren't sure yet why I'm running fevers, as usual. So far everything is coming back negative so they are switching some antibiotics around today and will continue to manage things in the meantime. (I haven't had a fever since this morning.) They also installed a pain pump yesterday to help with the mucositis. It has been spreading throughout my mouth today. I was just having throat pain.
Thank you for all of your prayers. These are the scary days, when my immune system is non existent and my body is fighting to survive. Please pray that the fevers remain within our control (so far Tylenol has been doing a good job) and that if there is a source to identify, we can find it. It would be nice to get off some of these "big gun" antibiotics as they come with their own list of side effects.
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About Me
- Brandon Wilhoite
- Amy was diagnosed with Acute Myelogenous Leukemia subtype M4 on July 2, 2006. For your convenience, Brandon & Gary can be contacted via email through amysblog@mac.com.
Timeline
- August 2007 - Clofarabine & Cytarabine with possible second transplant
- August 2007 - Intrathecal Methotrexate
- June - July 2007 - FLAG w/ mylotarg
- April 2007 - AML M4 MLL-ELL Diagnosis
- March - June 2007: Experimental DLIs
- March - June 2007: Decitabine 5/28
- November 2006 - Allogeneic Stem Cell Transplant (brother)
- September 2006 - Salvage Regimen - MEC
- July 2006 - Reinduction - Cytarabine & Daunarubicin 5/2
- July 2006 - Induction - Cytarabine & Daunarubicin 7/3
- July 2, 2006 - AML M4 Diagnosis
But we have this treasure in jars of clay, to show that the surpassing power belongs to God and not to us. We are afflicted in every way, but not crushed; perplexed, but not driven to despair; persecuted, but not forsaken; struck down, but not destroyed; always carrying in the body the death of Jesus, so that the life of Jesus may also be manifested in our bodies. For we who live are always being given over to death for Jesus' sake, so that the life of Jesus may also be manifested in our mortal flesh. So death is at work in us, but life in you. Since we have the same spirit of faith according to what has been written, 'I believed, and so I spoke,' we also believe, and so we also speak, knowing that he who raised the Lord Jesus will raise us also with Jesus and bring us with you into his presence. For it is all for your sake, so that as grace extends to more and more people it may increase thanksgiving, to the glory of God. So we do not lose heart. Though our outer nature is wasting away, our inner nature is being renewed day by day. For this slight momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal. - 2 Corinthians 4:5-18
21 comments:
Amy,
Thank you for the updates. I know how scary it can be to have symptoms but not know why. I will pray that the cause of the fevers will be found and that you will be better in no time!
Love,
Gina
Amy,
Thanks for keeping us posted so we know how to pray. We are still praying for you every day. We know the Lord is in control of everything and He will give you the strength to endure the race.
Love,
Kent & Susan
Yes, thanks for the updates.
Kentucky love, comin' your way.
(does that sound like a song?)
Thanks from us too for the updates this week. Hope you have a restful night tonight. May the Lord provide comfort, healing, wisdom, and strength for you all. Guess really we depend on Him for everything, always.
Love to You All,
Don and Lilan
I appreciate you keeping us updated. We continue to pray.
Checking in often. Thank you for the updates. Praying for you tonight, Amy.
Amy, thanks for the updates. We will pray for you again in our service tomorrow. Please let us know if we can help with Brandon or Gary or with food or whatever. By the way, we are slated to go in to have our third child, a boy, on Thursday. Blessings to you and peace.
still praying...
in Christ,
angela
Hey kiddo. You never make it sound this bad when we talk. You and Brandon and Gary are in my thoughts. I hope that you'll start having an easier go of it.
Take good care of yourself (Brandon you take care of her too).
Jonathan
I am checking in daily, Amy and continue to pray
You are such a trooper! I pray for you daily, and wish you many more special moments. I will pray for your fever to subside quickly, and for you to be back to feeling yourself.
Jenni
Amy, Thank you. I am sure that Psalm 23 comes to mind during this tril...He is with you in the valley dear sister. Praying for you!!
"Be still, and know that I am God" (Psalm 46:10) ~ my all time favorite verse for it sums it all up ~ for in the midst of the storms of life, we must stand steadfast, be focused on the face of Father God and 'be still'... for only then shall we become one with His 'words'... sending angel hugs from the Great Land of Alaska
Amy,
I am sorry you have been feeling so badly. I am praying for you.
Joy in affliction is rooted in the hope of resurrection, but our experience of suffering also deepens the root of that hope.
John Piper
Kim
I pray that you would feel the mighty arms of the Lord around you as you travel this journey. And that you would hear the prayers of so many being lifted up to the Lord on your behalf. We pray and believe that, with God's help, you can do this!!! God bless you, Amy!
I arise today through the strength of heaven; Light of the sun, splendor of fire, swiftness of wind, depth of the sea, stability of earth, firmness of rock. I arise today through God's strength to pilot me; God's might to uphold me, God's wisdom to guide me, God's hand to guard me. Afar and anear, alone or in a multitude. Christ shield me today against wounding: Christ with me, Christ before me, Christ behind me, Christ on my right, Christ on my left, Christ beneath me, Christ above me, Christ in me. I arise today through the mighty strenth of the Lord of Creation.
Came today to say hi!!
I hope you are doing better today. I am still praying for you. I have something for you on my blog.
Amy - we continue to pray for you here in TN. Thank you for the updates. I check in daily to see how you are doing.
"When my anxious thoughts multiply within me, thy consolations delight my soul." Psalm 94:19
"I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Wait for the Lord; be strong and let your heart take courage; yes wait for the Lord."
Psalm 27:13-14
Praying for you.
Love,
Amy Fedeli
Amy, Thanks for the great updates. I've been following your blog for some time now. I found you through Joe & Karen. You are in my thoughts and prayers. Stay optimistic and be strong.
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