I've developed a pretty nasty rash around my central line (Hickman). I mentioned it as a prayer request before -- this is about ten times worse and I'm really worried about infection. I had the doctor check it this morning while at the hospital for chemo and he said it looks o.k. so far, but if I start running a fever or if it looks infected I'll need to start an antibiotic. Worst case scenario, since my counts will be falling from chemo, I could end up in the hospital on IV meds and need to have the line removed.
I do not have a latex allergy, it's just skin that has been covered up for seven months that has had enough. I've tried every type of bandage that they make. Hypafix seems to be the best option right now because the tagaderm is condensating on the inside due to humidity and a wet dressing encourages a fungal infection, so I can't go there. It's extremely uncomfortable and somewhat swollen -- I'd really appreciate prayer that it will clear up quickly.
Also, to update, today was day two of chemo. I started out the week with blasts at 2%, which is the lowest they've been pre-chemo, I believe. I think this round is hitting me harder than the previous one, but time will tell.
Thanks for your prayers.
Amy
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About Me
- Brandon Wilhoite
- Amy was diagnosed with Acute Myelogenous Leukemia subtype M4 on July 2, 2006. For your convenience, Brandon & Gary can be contacted via email through amysblog@mac.com.
Timeline
- August 2007 - Clofarabine & Cytarabine with possible second transplant
- August 2007 - Intrathecal Methotrexate
- June - July 2007 - FLAG w/ mylotarg
- April 2007 - AML M4 MLL-ELL Diagnosis
- March - June 2007: Experimental DLIs
- March - June 2007: Decitabine 5/28
- November 2006 - Allogeneic Stem Cell Transplant (brother)
- September 2006 - Salvage Regimen - MEC
- July 2006 - Reinduction - Cytarabine & Daunarubicin 5/2
- July 2006 - Induction - Cytarabine & Daunarubicin 7/3
- July 2, 2006 - AML M4 Diagnosis
But we have this treasure in jars of clay, to show that the surpassing power belongs to God and not to us. We are afflicted in every way, but not crushed; perplexed, but not driven to despair; persecuted, but not forsaken; struck down, but not destroyed; always carrying in the body the death of Jesus, so that the life of Jesus may also be manifested in our bodies. For we who live are always being given over to death for Jesus' sake, so that the life of Jesus may also be manifested in our mortal flesh. So death is at work in us, but life in you. Since we have the same spirit of faith according to what has been written, 'I believed, and so I spoke,' we also believe, and so we also speak, knowing that he who raised the Lord Jesus will raise us also with Jesus and bring us with you into his presence. For it is all for your sake, so that as grace extends to more and more people it may increase thanksgiving, to the glory of God. So we do not lose heart. Though our outer nature is wasting away, our inner nature is being renewed day by day. For this slight momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal. - 2 Corinthians 4:5-18
28 comments:
Of course I will be praying, Amy. In a way it is good to have something specific to pray over too. You are always in my prayers, and those of my house group, all the way over the sea in England.
I am keeping you in my thoughts and prayers all the way from California.
Hi. I'm delurking. I can't even remember ow I got here a few months ago. A prayer request, I think. I have been praying for you. I was wondering, do you have Fixamul in America? It's breathable, and they use it on minor burns patients and the like here, so it's pretty good on the skin. It's also really strong, and you can only really get it off by soaking it, or rubbing some oil on it. Just a thought, but you know, an American probably invented it, and you have been using it. *grin* If so, never mind me. :) All my prayers and Gods grace for you dear.
Jenny
(Australia)
My family is keeping you in their prayers~
Crystal
Continuing to keep you in prayer!
Much love and hugs,
Amber
Hi Amy,
We have been praying for you every day. My boys and hiusband just asked today how you were doing, so I will tell them. We will pray about the rash problem. I know the patches can be awful! I still have discolred skin from them 8 months later! It was great news to hear that the blasts are only at 2%! Praise the Lord!~
Love you,
Gina
Absolutely--I will pray about this!
Kim
Amy, Brandon, and Gary, we love you all and are keeping you all in prayer!!!!!!!! Papa & Meam
Sending prayers your way! I found your blog a while ago and have been praying for you and have unbelievabley moved by your steadfast heart and unfailing faith in God!
I will pray for this. Many prayers for you.
Amy,
I heard about your need for prayer through a friend a while ago. You don't know me. But I wanted to let you know that are family is praying for you. Love you!!
Prayers being said.
We'll definitely be praying about this infection Sister. Thank you for letting us know about this.
Praying for the rash to go away, and praying that if you are feeling chemo's effects, it is because - and only because it is WORKING! God bless!
Amy....
I will pray diligently for your skin. I always wonder when someone will invent some amazing dressing that doesn't have to be changed all the time, is comfortable, and lets your skin breath but not let infection in. Every time we change Alivia's I want to suggest that the doc wear a dressing for months at a time and remove it weekly and rub alcohol on it. Maybe then they would have a bigger desire to invent the perfect bandage. Oh I also think they should have to practice all procedures on each other. I think you would learn how to get a vein the first time or do a perfect biopsy if you had to do it to a friend. Just random thoughts..can you tell we've been in the hospital too long. Praying we are in the hospital so you don't have to be!!
*E
I'm so sorry about your painful rash. It sounds horrible. Our family is praying for you and send our hugs.
I love you, friend. Praying specifically for your Hickman area. Eph. 3:14
SENDING YOU PRAYER
RIGHT NOW
10:00 pm EST INDIANA, PA.
(praying)
Hey kid, sorry I wasn't much up for talking last night. Its awesome to hear that your blast counts are/were at 2%. Probably some of the best news I've heard about your condition for a while. Here's something to remember though, after all you've been through, and all you've had to deal with... The skin rash is a pain, but I'm pretty sure you've handled worse with aplomb. I'm pretty sure (even though I don't have to deal with it at all) that you'll be able to do the same here.
I prayed for you this morning Amy, but it is good to know specifically what your needs right now are. I'm lifting you in prayer sweet one.
Father, we ask for peace and comfort for Amy. We pray for healing, and for no infection to begin to set in. I ask You to bless Amy in a very special way today, and to speak to her in such a magnificent way that she has to share it with others. Give wisdom to her caregivers, and give her family an extra portion of tenderness and compassion toward her. Hold her close to Your heart, Father, and let her hear it beat with love for her.
In Jesus' name, amen.
Prayers going up for you! I pray all will be well, that you will have no infection and that you won't suffer too much from the chemo. God Bless You!
Praying!
Praying for you...I hope that this rash will go away soon. Chemo is always very hard on the body. I pray that it will go okay this round.
(((hugs)))
We are and will continue to keep praying for and your health
I'll be praying for you, Amy, especially for that rash!
Happy Mother's Day, Amy! Hope this finds you in good spirits and rid of that bothersome rash. We are still praying for you! We especially ask Mary, the Mother of God to comfort you in all you needs. We ask this through Jesus Name. Amen. Love, T&J from the Hayden Community
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