Cardiac arrest, heart failure, cerebral hemorrhage, pneumonia...the list of side effects on the drug information sheet I received this morning were sobering to say the least. I fought the aspect of chemo that is rarely mentioned -- psychological -- wanting to run but knowing that this poison holds potential life for me. Fighting to live, once again. Praying that this time it will work.
Meanwhile, the disease continues to rear its ugly head, and my blood work reminds me of how sick I really am. Friday's transfusions provided a much needed boost in my hemoglobin and platelets. I'm mostly concerned about my neutrophil count, which was around 800 today. I'm used to seeing those numbers after chemo, not before. This is my first time dealing with low counts outside of the hospital.
Thankfully treatment went well today. I have yet to experience any significant side effects. I'm fighting mouth sores as a result of low counts, and I had some nausea today, but was able to keep everything down with some help from zofran and compozine. Nausea seems to be the most common side effect with decitabine.
I'll be receiving a T-cell or lymphocyte "booster" the week of the 26th up at Barnes, where I received my transplant. The goal is to infuse another 5-7 million cells. I have 3.5 million frozen, so my brother will be going in for more pheresis. I appreciate his willingness to go through it again. I'm nervous about a possible GVHD flare, but it holds some promise of remission, so I'm willing to try.
Thank you for your continued prayers.